Journey to a New Heart

This seems to be our new norm.  Waiting for the CALL, waiting for his heart cath to get done and waiting to hear he is listed here in Nebraska, waiting for people we hope would contact us to show support.  Now I am not complaining or mean to sound like I am on a pity party, this is our life...NOW.  What an amazing life it will be when we do get that CALL, whether it be at Iowa or Nebraska. I have said it before and I stand by it...this is not a journey for everyone to handle and I guess that is why some pull away.  But we have been graced by an amazing support system that has been there for us.  We have so many things to be grateful for.  We have encountered amazing nurses and doctors, people who we have gotten the pleasure to work with who continue to pull us through.  We have had some that we had to decide weren't for us in the best interest of Eric.  And that is my advice to all of you...be your best advocate.  If something doesn't feel ...

So here we are in Nebraska... Eric is getting worked up to be listed here as well as at the University of Iowa.  We have been very impressed so far at our 2 days of appointments and we have 3 more; tomorrow as well as Tuesday/Wednesday next week. The fund-raising efforts continue and we have been so amazed at the support from so many as well as gestures that to some may not seem huge but to us mean so much.  An offer to come change Eric's oil, a night at a hotel so we didn't have to drive the entire way in a day and money/gift cards for gas and food along the way.  To us, these are such kind and amazing acts of kindness that make our hearts full of gratitude that some are willing to give of themselves to help us. In an appointment today, Eric pointed out the reflection that it took us so long to ask for help, because in our respective careers we are the ones that fix issues...not the other way around.  All of this is amazing and overwhelming in a way that we know...