So everyone thought the wait for an organ, a second chance, was difficult. And don't get me wrong, it is/was. But the road to recovery, once you have that gift, is sometimes just as hard if not worse.
Now, everyone's story is different. Some people wait a short time, always feeling OK for them while they wait and the post time is horrible. Then you have people who wait a REALLY long time, lets say maybe 1008 days, and the first few weeks are really good but there is a HUGE adjustment curve.
Now, as I say that, Eric is still doing great. And he so far is ahead of the curve, but the medicine that will be on board, to essentially save his life and preserve his heart, are not a walk in the park.
They have an amazing purpose, to help his body accept and not fight the new heart. But the down side of them, is they are really hard on the body, lowering his immune system, to keep his body from rejecting the heart.
And when I say hard, I mean hard. Gut troubles, stomach ache to fight when you know you need those essential nutrients, and the need to push through.
Now, I don't really mean to turn it away from him, but that is tough on me too. I do the cooking right now. So, to choose and make the right meals to appease him and THE GUT can be tough. But I will continue to cook the food he needs, give him the nutrients this new amazing heart and he needs, and just continue to BE THERE as best I can.
I think that is the best advice for anyone who may be going through something tough. Maybe not transplant or health tough and feeling like you are all alone at times, but life in general tough. Just be present...for yourself, for anyone who encounters you...and for the person who is experiencing and fighting the tough.
It is a hard thing to go through when you have support, but when there are those you wish were there, that may not fully be...that stinks. But we fight...and we persevere...and we come out better on the other side.
So when someone tells you that they are there for you, but their actions may not show it...make your own FIGHT. There are a group of people who will fight to the end for you...and you know who they are. Find them, seek them out, and never let them go. They will be your strength when you need them most.
Happy Monday everyone.
Now, everyone's story is different. Some people wait a short time, always feeling OK for them while they wait and the post time is horrible. Then you have people who wait a REALLY long time, lets say maybe 1008 days, and the first few weeks are really good but there is a HUGE adjustment curve.
Now, as I say that, Eric is still doing great. And he so far is ahead of the curve, but the medicine that will be on board, to essentially save his life and preserve his heart, are not a walk in the park.
They have an amazing purpose, to help his body accept and not fight the new heart. But the down side of them, is they are really hard on the body, lowering his immune system, to keep his body from rejecting the heart.
And when I say hard, I mean hard. Gut troubles, stomach ache to fight when you know you need those essential nutrients, and the need to push through.
Now, I don't really mean to turn it away from him, but that is tough on me too. I do the cooking right now. So, to choose and make the right meals to appease him and THE GUT can be tough. But I will continue to cook the food he needs, give him the nutrients this new amazing heart and he needs, and just continue to BE THERE as best I can.
I think that is the best advice for anyone who may be going through something tough. Maybe not transplant or health tough and feeling like you are all alone at times, but life in general tough. Just be present...for yourself, for anyone who encounters you...and for the person who is experiencing and fighting the tough.
It is a hard thing to go through when you have support, but when there are those you wish were there, that may not fully be...that stinks. But we fight...and we persevere...and we come out better on the other side.
So when someone tells you that they are there for you, but their actions may not show it...make your own FIGHT. There are a group of people who will fight to the end for you...and you know who they are. Find them, seek them out, and never let them go. They will be your strength when you need them most.
Happy Monday everyone.
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